GoodNewsNetwork2d
Boy with Rare Skin Condition Can Sleep with Eyes Closed for The First Time in 7 Years
Carter Bresee was born with lamellar ichthyosis (LI) a rare genetic skin disorder in which the body creates skin cells that ...
Science Daily4d
Zebrafish as a model for studying rare genetic disease
Nager syndrome (NS) is an extremely rare disease that causes developmental problems and anomalies in facial bone structures and limbs. While the causative gene is known, its underlying mechanisms ...
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What Is Thrombocytopenic Purpura: Rare Disease that Has Plagued Julia Roberts for Almost Two Decades
Despite battling a rare blood disorder for years, Julia Roberts continues to captivate audiences with her iconic performances ...
Belfast Live on MSN15h
Marathon bid by Hollywood actor Colin Farrell and friend with rare skin disorder raises £450k for charity
Colin Farrell and Emma Fogarty, who is Ireland's longest-surviving person battling the genetic condition epidermolysis ...
NOLA.com7d
95-year-old Louisiana Diabetes Association founder raises awareness for rare skin disease
Sam Gallo is the founder of the Louisiana Diabetes Association and the man responsible for centralizing research and data for ...
Local girl who captured community’s heart with humor, bravery while facing rare disease dies at 14
When she was 10 months old, Carly was diagnosed with progeria, an extremely rare genetic disorder that accelerates the aging ...
Hundreds across Yorkshire treated in hospital with rare skin disease from Victorian times
Hundreds of people across Yorkshire have been treated in hospital for a rare skin disease, show new figures.
The highly contagious Victorian skin disease linked to poverty which is soaring in the UK
NHS figures show a 66% increase in scabies cases so far this year. The disease can lead to complications and even result in ...
This Minnesota council helps people with diseases you’ve probably never heard of
The Minnesota Rare Disease Advisory Council works to help those with rare diseases get screened, diagnosed and treated.
Minnesota Daily5d
Parents of children with rare diseases share their stories for Rare Disease Day
Karl Nelsen and his 11-year-old daughter Sammi both have a rare disease. Ectodermal dysplasia can cause changes in skin and nails, loss of hair, dental challenges and issues with body temperature ...
The Advocate8d
95-year-old Louisiana Diabetes Association founder raises awareness for rare skin disease
In 2023, Gallo was diagnosed with Grover’s disease, an uncommon and painful skin disease that presents as an itchy rash. In keeping with his success with the American Diabetes Association ...