Going to college comes with many changes, and for students with cystic fibrosis, there are additional unique challenges like managing medications and health concerns. While adapting to this transition ...
I refused to let cystic fibrosis define my limits, using it instead as fuel to embrace life’s challenges and inspire others. Through endurance sports, public speaking, and coaching, I encourage people ...
When I fell into a health insurance nightmare after my lung transplant, my husband and I decided to move to his home country — England. Now, 10 years later, I feel like I float somewhere between the ...
I’ve been a sleepy gal my whole life. If given the option to watch a movie or take a nap, I’ll choose the nap almost every time. I’m very sleep dependent. I don’t operate well if I don’t get good ...
The Cystic Fibrosis Foundation is funding the development of a gene editing therapy that is designed to use ReCode’s tissue-specific delivery vehicle to transport gene editing cargo to the lung cells ...
Parenting a child with cystic fibrosis is very new to me and my partner, Ryan. Our daughter, Audrina, is 6 months old and was diagnosed with CF shortly after birth. Audrina’s experience with CF has ...
I was born in 1983, beginning my lifelong journey with cystic fibrosis. My early days were fraught with challenges. I had a swollen abdomen at birth, struggled with failure to thrive, and suffered ...
The Western New York Chapter of the Cystic Fibrosis Foundation welcomes you! Our chapter covers Buffalo, Rochester, and the surrounding areas. Volunteers are the key to our success and the lifeblood ...
The Central/Western Oklahoma Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to ...