This report offers key insights from last year’s CF Foundation Patient Registry data. The Registry includes data from people with CF in the United States who visit CF care centers and agree to ...

Passage of the bill — which cuts critical health coverage for people with cystic fibrosis and their families — shows the ...

Growing up, it wasn’t my cystic fibrosis that fueled my anxiety — it was the checklist of mental tasks I believed would prevent disaster. It wasn’t until adulthood that I learned this behavior is ...

Training for an Ironman race is no easy feat, especially when living with cystic fibrosis. But I'm more determined than ever to push my limits, make my younger self proud, and prove to others that ...

Hearing the words cystic fibrosis can be a lot for first-time parents — or any parent. In the fall of 2019, my husband David and I showed up for an OB-GYN appointment. I was about 11 weeks pregnant ...

You're probably wondering why we didn't go to any shelters. Well, to answer that question, we tried to, and they would take my partner in a heartbeat, no questions asked. However, with my cystic ...

I thought I had cystic fibrosis figured out. Growing up, I had challenges like a brutal morning cough that lasted for hours and a constant sense of fatigue, but I still felt like one of the lucky ones ...

Going to college while living with cystic fibrosis carries its unique challenges. One of these is learning to be vulnerable about CF with others. But as I learned to be open, I discovered that CF did ...

A recent hospitalization reminded me that my strength to fight cystic fibrosis is deeply rooted in my Filipino heritage and the unwavering support of my family.

I was diagnosed at 2 years old with cystic fibrosis. My pediatrician initially thought I had asthma when I was having shortness of breath and wheezing with heavy exercise. My great grandma ultimately ...

For most CFers, we just want to be “normal” but sometimes you must be careful what you wish for. I was unprepared for adulthood. Once comfortable with the idea of dying young, I now struggle to adapt ...

Sure enough, in April 1985, I was admitted once again and was tested for CF. The results came back positive, and I was diagnosed with cystic fibrosis. My parents were informed about the disease and ...