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Eventually, I was given a name for what was happening inside me: Left Mesial Temporal Sclerosis—a form of scarring deep in the left temporal lobe of my brain, right inside the hippocampus. That’s the ...
The Shark Tank competition was reformatted for 2025 to feature two categories. The first is the Community Award, with winners receiving a prize value of up to $50,000. The winning entries were ...
I had temporal lobe epilepsy from infancy until the age of 12. My seizures began just before I turned one, then stopped for about four years. But when I was five, they returned with a vengeance. At ...
The latest edition of the Foundation Quarterly captures a defining theme, Turning Hope into Action. This issue highlights powerful personal stories, the dedication of volunteers raising awareness, and ...
For 29 years, I had no idea I was living with daily and nightly seizures. I believed everyone occasionally experienced sudden waves of bizarre sensations and brief lapses in awareness. I now know that ...
May is officially recognized as Women’s Health Month. This month, we’re taking the time to highlight women’s unique health issues and the importance for women of all ages to make their health and well ...
Living with epilepsy has shaped me in profound ways. It’s taught me resilience, patience, and the value of living in the present moment. The hurdles I’ve faced have made me stronger and more ...
My journey began at eight years old, when I was diagnosed with Sunflower Syndrome, a rare type of nonconvulsive epilepsy. My seizures were often triggered by bright, flashing lights, along with ...
The 118 undersigned organizations – representing people living with epilepsy; caregivers and loved ones; physicians, care providers, and epilepsy centers; epilepsy researchers; and others – are united ...
This experience has fueled my determination to advocate for a better future for all individuals affected by epilepsy. I decided to share our story upon learning about the remarkable work being done by ...
Her main interests have been medically intractable epilepsy, clinical pharmaceutical trials evaluating new treatments for epilepsy, treatment and care of women with epilepsy, epilepsy in pregnancy, ...
I was diagnosed with juvenile myoclonic epilepsy (JME) at 15 years old after experiencing two tonic-clonic seizures in high school. What started as a typical morning quickly turned into a defining ...
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